Turf Wars

Anyone
studying the recent debate on drugs and drug treatment in the media
could be forgiven for thinking we've all gone mad. Drug use, we are
told, is an illness that can be cured as long as we are willing to
pay for the right treatment. The right treatment is residential
rehabilitation and the way we need to pay for it is to take all the
investment we have in methadone maintenance services and needle
exchange and spend it on residential services. Because as
Melanie Reid put it in the Times -
"Two
months is usually sufficient to get most people off drugs.
Abstinence programmes are proved to be seven times more effective
than methadone."
Simple
Solutions
You see,
its simple. Our drug problems can be solved, we can all breathe a
huge sigh of relief and be confident that the past 20 years of harm
reduction have just been a brief delusional nightmare on the
righteous road to a drug free society.
Kathy Gyngell in her blog on the tory Centre for Policy Studies website
says:
"They
could simplify and reform funding arrangements under one roof. They
could reallocate resources from Tier 3 ‘prescribing’ to Tier 4
rehab. "*
So why aren't we doing just this? If residential rehabilitation IS
the answer to our problems why aren't we commissioning it ? Last
weeks "Addiction Today" in its piece questioning whether the
NTA were "fit for purpose" said:
"Medically invested DATs and
Primary Care Trusts are diverting people to methadone maintenance
and other harm reduction …bad practice dominates with people
treated as statistical units to serve political targets.
"
So its political? This is a bit of a strange one, because
politicians tend to go for the populist angle and as the same
article points out, the public are pretty much overwhelmingly
convinced of the benefits of abstinence focussed treatment and the
value of residential services. One would have thought that if there
were some quick political wins to be safely made by moving
investment to residential rehabilitation they would have done
it.
Kathy Gyngell's view is simply that "past record shows NTA upper
management simply not wanting to".
So that's the NTA taking a principled stand against a simplistic
populist and politically appetising solution? Ok …
In fact most of those who are espousing a retreat from harm
reduction seem incapable of either making a case for this approach
to strategy or a rationale for why our current administrative
masters find it so unappetising. The closest we've come is Melanie
Reid's citation of a "powerful methadone lobby" but as this is the
woman who reckon's that "Britain's Got Talent is a model for a competitive,
compassionate, cohesive, colour-blind society"
we may be well advised to take her
ramblings with a pinch of salt.
I wonder if the current furore is more a case of turf wars than
anything else.
Variable Quality
With the exception of things involving aliens, black boxes or Nancy
Reagan, in the world of treatment lots of different things have
some impact on some people sometimes. Residential treatment is a
really important option to be able to offer people, but its not
without problems and its neither goose, nor golden egg.
Quality across the residential sector is highly variable. The
Commission for Social Care Inspectorate (CSCI) is responsible for
the main part of the drugs residential sector (with a small number
of specialist clinical services being inspected by the Healthcare
Commission), it achieves this largely through self inspection, with
only a very few unannounced visits to services of concern. While
inspections are pretty good at assessing where a service is at,
they tend to be less effective at making sure services improve.
They look at whether a therapeutic regime is in place, but not at
its quality or effectiveness . The NTA guidance issued recently
- Improving The Quality and Provision of Tier Four Drug
interventions is a useful
start, but one does have to wonder why its taken so long to arrive
and while it provides a framework, does not solve some of the
problems about regulation and improving standards.
The lack of a rigourous inspection regime or much commitment on the
part of a number of providers to do anything other than find
imaginative ways of side stepping what regulation there is has done
little to build confidence.
De-registration, for example, is where a residential treatment
provider declares themselves no longer a social care service,
applies to be removed from the CSCI Register and redefines
themselves as providing housing with additional support. This is a
canny way of finding a different funding for residential treatment
- using housing benefit to cover the accommodation costs and
elements of Pooled Treatment Budget funding and Supporting People
to support the interventions. But what it also does is enable the
residential provider to sidestep what little regulation of
residential services there is and run pretty much completely
un-inspected by and unaccountable to anyone. This is particularly
frightening when you find some providers offering detox and other
clinical interventions through this type of service.
I've noticed a number of residential treatment services that now
claim to be “regulated by QUADS” (that is Quality in Alcohol and Drug
Services). QUADS is little
more than a tool for self audit and inspection and does little to
provide guarantees of the quality or safety of a service. DATs
don't regulate residential services because, with a very few
exceptions, residential services aren't funded by any one DAT. The
NTA don't regulate residential services because the NTA regulate
commissioning not provision.
In many ways the most accurate regulation we have of these services
is the old one of "bums on seats". That makes it worth asking the
question if people aren't using residential services is it because
many of those residential services aren't very good?
Why
They Don't Want To Go To rehab
There are some excellent residential facilities. I would defy
anyone to visit an establishment like Clouds House for
example and fail to be impressed by the degree of care and
intelligence they bring to their work and the tremendous respect
with which they treat the people who use their service - which
would put many community drug services to shame. However the
majority of residential services I have visited in the past 20
years are places I'd reject as a boarding option for
my dog, never
mind as a treatment option for a vulnerable person. Like the
service I visited 12 months ago where the manager called one of the
residents over, lifted his jumper up, patted his bare belly and
said
"There, look how well we feed
them here - he's turning into a little fat boy".
This was a man in his late 30's, who she subsequently introduced me to. Then there was the
detoxification service where not a single risk assessment had been
undertaken for any of the residents, and staff had been appointed
and employed without either references or CRB checks (this was
operated by a major drugs charity and these flaws were repeatedly
reported by CSCI, but nothing was done over a three year period to
correct them). Or the rehab where community meetings bore more
resemblance to a denunciation meeting in Mao's cultural revolution
than any form of treatment - with residents routinely humiliated
and degraded in the interests of "improving their motivation for
recovery".
Many service users I have worked with have attended residential
treatment not just once, but on many occasions and on many
occasions have dropped out or been kicked out. As one old colleague
of mine used to say "I've done my full 6 months in
rehab. Or at least I've done one month in 6 rehabs - and that's
nearly the same"
We know that residential treatment works for some people some of
the time but we also know that for a lot of people its a disaster.
Premature referral, referral to the wrong type of residential care,
referral without regard to family circumstance or worries about
childcare all impact on the likely success of the treatment. Many
of the people we have in treatment now, have been in treatment
before and many of them know that going away and living in Somerset
for 6 months didn't prepare them particularly well for coming back
to inner city Birmingham or Manchester. A lack of aftercare does
not predispose either referrer or referred to choose the
residential option - but that's not the only reason. The majority
of drug users have lives, families and jobs. They don't always want
to give them up and go away - particularly if there's a risk their
job won't be kept open and their flat won't still be there for them
or worst of all they'll be separated from their kids.
Additionally, the expansion of community treatment is bound to hit
the residential sector. If people have an option of treatment at
home that enables them to keep their jobs, homes and families
together, why wouldn't they choose it? The ongoing gnashing of
teeth on the part of some elements of the residential sector about
the closure of tier four services may be motivated by a desire to
open up treatment options to people who need them. I'd bet its also
equally motivated by a desire to keep the wages bill paid and the
wallet full.
Target Culture
What's interesting about much of the commentary about the lack of
investment in residential services is the volume of it generated by
the sector itself. In this of course they are no different to any
other part of the drugs field. Those involved in community
treatment services by and large defend community treatment. Those
in the residential sector defend the residential sector. The
difference is that over the past ten years Government has chosen
the community sector as beneficiaries of much of the new investment
available. With that investment has come a vast expansion in
treatment availability and a reduction in waiting times for
treatment - the type of volume expansion that would have been
neither practical nor affordable using the residential sector
alone. In return for that investment, the treatment sector was told
to prioritise the things that were important to Government. These
things and their relative importance were expressed through
targets.
Setting numerical targets has dangers – particularly when continued
investment is predicated on reaching or appearing to reach them.
Instead of the target being something that measures what we do, the
target becomes what we do, and somewhere in there, we lose the
client. Services get built not to improve people’s quality of life,
but to deliver targets. You see this again and again when you look
at treatment systems like those developed in the early years of
this government for acute healthcare. Targets distort healthcare
systems. In the case of drugs treatment, we created a sausage
machine that met the proxy indicators of success identified by the
Government. So for example it was identified that treatment
episodes that lasts 12 weeks or more get better outcomes in terms
of reducing criminal activity, and improving health and social
functioning. This enabled us to set a target for treatment to last
12 weeks or more, but what we didn’t do was set a target for
reduced criminal activity or improved health and social
functioning. The focus for the service and the DAT became the
length of time someone was in treatment, not their improved quality
of life.
In the end proxy indicators like this don’t deliver outcomes, they
just deliver spreadsheets. While you may meet the targets you’re
set, you don’t know that you’re going to get the results those
targets should indicate, but that doesn’t matter because you’re
meeting the target. However without the focus on the outcome rather
than just the target, the promises made to the public and
politicians about the targets aren’t fullfilled, and sooner or
later people begin to feel conned.
Its against this background that the residential sector, fired up
by a media able to smell government failure a mile off, are baying
for that investment to be redistributed "Choose us," they cry, "We make people
better". According to reports of a recent meeting in
Manchester which while identifying that polarization in the drug
treatment field was a bad idea, ran an oppositional debate
entitled “Maintenance Is for Quitters –
Rehabilitation Is For Survivors”, some people are now calling for an "Abstinence
Target". This echoes Mark Easton’s attacks on the NTA where he
repeatedly questioned why there is no target for people leaving
treatment drug free.
So how would a target for abstinence work - and what would it
achieve? Despite the claims of those lobbying for this kind of new
orientation, its unlikely that residential rehab would be able to
provide everything to everyone from day one. Despite assertions
that all it would need is a simple reallocation of funding from
community to residential services, residential rehabilitation on
demand for all is unlikely to be practical or affordable. Community
services would probably still provide the majority of treatment.
Presumably with an abstinence target, those community services
would be directed to increase the number of people being discharged
drug free. Services would need to develop new strategies to work
towards that target - both official and unofficial. Officially
services would talk about stabilisation (probably on as low a dose
of methadone as possible), support and counselling and gradual
reduction. But if you've got a target you have to meet as we’ve
seen in the recent past, you’ll move heaven and earth to meet it.
If it gets to January 1st and you’re meant to have 50 people out of
the door, drug free by April 1st, but so far you’ve only got 10,
then you’re going to have to get 40 extra people drug free and
discharged in the next 3 months. That’s 40 people drug free and
discharged regardless of personal circumstances, regardless of
health status, regardless of family commitments – because you have
to meet your target. But its ok really, because although you’ll
detox and discharge them now, they can come back in May and you can
sort them out all over again. In his August 2008 article,
A Flag in the Breeze, Mike Ashton reminded us of similar attempts to
move away from long term maintenance provision in the States:
"When
in the late 1990s New York’s mayor Rudolph Giuliani moved to
curtail methadone treatment, to predict what might happen,
researchers trawled through the back catalogue of studies of
discharge from the treatment. They concluded that as things stood,
it would be “unwise to structure methadone programs and their
financing so as to discourage or impede long-term maintenance, and
at the same time to pressure patients overtly to accept abstinence
by heralding its supposed desirability or superiority”.
Post-discharge relapse was the norm and with it death, disease and
social deterioration."
The
Great Divide - Public Investment, Individual Recovery
So what should government choose to invest our money in? Services
that get people off drugs? Services that keep people on drugs?
Maybe services like the ones we used to have in the good old days
which kept people on drugs, then took people off drugs and then got
them on them again in that lovely thing we used to call the
revolving door, before we learned to refer to it as the 12 week
retention target.
The truth is, it shouldn't be government's job to choose what kind
of treatment we invest in, but to make sure that there are a range
of treatment options available to suit the different needs and
choices of people who experience problems with substance use (and
yes, I know its trendy to say "addicts" again, but I've never liked
name calling). It is not government's job to identify whether
abstinence or maintenance is appropriate to help someone achieve
recovery. "Recovery" can only be defined by the individual
concerned. Government is
responsible for minimising the harm caused by drugs and putting in
place initiatives that maximise the protective factors for
communities and individuals so availability need not turn into
problematic drug use. This means investing in things like
employment support, housing, decent education and community
policing. Government is also responsible for making sure that the
provision of a wide range of treatment is adequately prioritised,
funded and regulated, subject to scrutiny regarding clinical
effectiveness and of a decent quality. Beyond that, choices around
treatment type need to be made by the individual seeking the
treatment and their family and friends if they choose to involve
them. These choices can be informed by a strong relationship with a
key worker and by involvement with the criminal justice, mental
health or children's services. But the decisions need to be made by
the individual concerned, not by a mandarin in Whitehall, not by a
lobby from either side of the treatment industry and certainly not
by the media.
Its said that the biggest divide in the drugs field is between
those who believe in abstinence and those who believe in
maintenance. I don't think that's true. Melanie Reid and those who
espouse similar views often barely disguise their intolerance, lack
of compassion and essential dislike of their fellow human beings
behind a veneer of phoney outraged morality -
"Street
drugs are a lifestyle choice. Being a taxpayer is not; and its
harder to be tolerant of the rotten choices of others when one's
hard earned money is spent subsidising them long term"
I wonder what she'd like
us to do about those people who make rotten choices if they don't
do what we say? Does she really believe if we shut down the needle
exchanges (what's left of them) and the methadone clinics that the
people who use these services will simply look around and stop
using? Surely its obvious by now that we will achieve nothing by
screwing up our eyes, putting out fingers in our ears and
pretending that no one will ever use drugs if we tell them not to?
We'll achieve less still by sifting people into categories of those
who deserve our support and compassion (and tax!) and those who
don't.
I remember having a conversation about the importance of client
choice with a colleague, about 4 years ago, as we were driving at
breakneck speed around the Lancashire Yorkshire borders.
"But
Sara" he said,
"you know as well as
me that there are people who can't make those kinds of decisions,
people who've got in so deep, who've become so chaotic that we have
to do something".
And I agree with him. We need to make sure that we have adequate
provision of good quality open access services in which people can
- if need be – get patched up, helped towards some stability and
supported and motivated to make some decisions and choices about
their future. As we support people to access the interventions that
make sense to them - whether that's residential rehab., community
maintenance or detox., or a combination of these options, we keep
the safety net in place. We need to help people stay as safe as
possible for as long as possible so the harm experienced by them,
their children and families and the communities in which we live is
minimised.
We do that through rational, humane and pragmatic approaches to
substance use. This is what harm reduction is about. Not stifling
individual aspiration in order to meet political objectives, and
not creating a system so dogmatic in its push towards one
particular type of treatment that it cannot accept the validity for
other people of different approaches.
And that is where for me the divide in drug treatment lies - not
between maintenance and abstinence or between needle exchange and
needlework or 12 steps and harm reduction. The real divide is
between those who want to impose solutions on people and refuse
support to those who don't fit into their narrow view of treatment
(who perpetuate these turf wars) and those who want people to be
able to access a full range of support that addresses their
individual problems. Or to put it more simply, those who believe in
people's right to define their own recovery and those who
don't.
(please see also LDPF response and DrugScope Response to Melanie Reid's article)
* At
the risk of being churlish, this actually wouldn't be that easy.
You'd need to develop a new system of regulation for the
residential sector, a new commissioning structure - possibly sub
regional or possibly based on individual brokerage against a
regional or local pot. You'd also need to disaggregate the current
drugs spend from local Community Care budgets and reallocate it to
the new commissioning structure. This would probably need to be
undertaken at a departmental level.
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