News from Auburn Thu Nov 13, 2008


In this issue:

Advice when in a medical environment
Health update
Supersize me - why God gave me cancer?
And now for some fun conversations of the week

Dare I say it:  the week has been ... uneventful.  Boring.  Content.  Ahhh.

I've sat at my computer editing a student's thesis (much slower going than I'd like), writing two books, working on simulations, and napping.  It's been a good week.

Advice when in a medical environment
I omitted some of last week's drama, mostly because it was caused by my own stupidity.  Viva asked me regularly if my stool (poo) was black and tarry.  I didn't think that was an accurate description, so I said "no."  

Mistake #1.  

Two units of plasma and four units of red blood cells later, Viva asked me again, "Have you had any bowel movements?"
Three
"Were they black and tarry?"
Yes
"Did you tell anyone?"
No

Mistake #2.

Now, at this point, I can tell you the look on the face of every reader of my newsletter who is in the medical field.  If looks could kill ...

Some reactions to this story:
My youngest sister, Heather, who works as a cardiac nurse: Did you slap him silly for not reporting it to the nurse?   What the heck is he in the hospital for anyways if not for observation!!!!!   ...  People like him drive me nuts at the hospital.  "Well, yes, I was having chest pain all night long doctor, but the nurse seemed so busy."

I wrote back that "All nurses here concur with your opinion of patients who don't report their symptoms. You have a fan club."
She answered, "glad to know you've set the record straight and let the nurses know that your entire family isn't made of idiots- you know, that it's just you!"

Tuesday I went to see Dr. Graves for a follow-up appointment for last week's hospitalization.  Viva related the story to her as the appointment ended.  Oh, was that a Kodak moment!

Health update
By the way, my blood work on Tuesday was as normal as one could ask for.  My hemoglobin was 13.8 - highest it's been that I can remember!  - and my clotting times were also normal (actually a little faster than desired).   

In terms of my recovery schedule, I asked Dr. Graves what I could expect in the future, and her answer was that there's no way to know right now.  First, we need to get me weaned off of steroids and oxygen.  (We'll be doing that, carefully, for the next month or two.)  After that, an assessment will be made of whether or not to do a bone marrow transplant.  If yes, 2009 will be another tough year.  Either way, I have a lot of physical rehab to do to rebuild muscle mass, endurance, etc.  

On Dr. Graves' orders, I've started to exercise a bit more aggressively now.  After the look I got on Tuesday, I don't dare ignore Doctor's orders!   :-)

Supersize me - why God gave me cancer?
This week my friend Tom and I went to Wendy's for lunch.  That's my first fast food in quite awhile, especially since I watched the documentary Supersize Me.  All I've ordered from McDonald's in the last month or so is unsweet tea. (a huge cup for only $1!  Can't beat that!)  Anyway, I decided to have a hamburger, a salad, and an unsweet tea.

Hamburger.  Nasty.  Ick.  Bleah.  Ugh!

After eating healthy for a few weeks, the fat, grease, whatever was in the burger was awful.  When I got home I told Viva and Adam about my reaction and they said, "Now we know why God gave you cancer - to get you to eat healthy!"

PLEASE don't make me give up deep dish pizza at Papa Dell's!

And now for some fun conversations of the week
Viva: (seeing me early in the morning) "Are you sick?  You're pink!"  
Me: "My skin is the same color as yours."
Apparently she's become accustomed to being married to a pasty-white zombie!

On the phone:
Me: "It's nice to be able to laugh without passing out."

Walking the dog.
Me: "Aimee, I can't walk that fast, so either quit pulling or we go home."  (Didn't work.)  "HEAL!"  (She stops and gives me sweet puppy dog eyes.)

Kayla was sick today, so I took her to the doctor.  Conversations:
"Daddy, you know how you can be sick so that you feel fine when you hold still but then you feel icky when you start doing anything?"
I know exactly what you mean.
"Oh, right."

She later held up a band-aid where they'd pricked her finger to get a blood sample.
I held out my left arm, still bruised from the many needles and IV's of last week.
"ARGH!"

At home that night:
"I feel like I've wasted my day!"
I feel like I've wasted my year.
"ARGH!  I'M NOT TALKING TO YOU ANYMORE!"

Posted: Thu - November 13, 2008 at 05:48 PM           | |


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