Thu - May 10, 2007

Mom's Gradeschool/highschool picture book her teacher made 


This booklet of pictures was created by Mothers high-school teacher Miss Lee in 1939. I re-created it in Keynote (like powerpoint) and was saved as a QuickTime Movie. Shows Mom in her high-school years prior to meeting Dad.

This is a large (2.4 MB) file I created for Mom ... DO NOT attempt to open if you are only on dial up modem. If you have broadband should be OK, but may take some time. Let me know if you can view it. thanks, Dave

Well heck, I checked the site and the movie does not work, and I don't know why. Will work on it when I get time.



The Poem below, written by Mom's teacher is in the quicktime movie above, but hard to read,
so here it is full size. Have a great day. Dave
 

Posted at 01:48 PM    

Sun - November 2, 2003

Moms end is Her new beginning! 


Our beloved Mother, and friend has passed on this Saturday evening -- November 1, 2003 approximately 10:55 p.m. "ALL SAINTS DAY"

It is the end of this earthly life here, but the beginning of a new one -- somewhere else. Somewhere better, somewhere safer, somewhere where she will suffer no more. Her presence and loving kind ways will be sorely missed by all of us .. I know she worried about us all to the end. A mom till the very end, unconcerned about herself, even unto death.

I am glad she is not suffering any more. Near the end there I prayed that God would take her poor soul peacefully.  

I want to share a prayer and some thoughts Mom wanted me to add to her memorial. 

 
You can shed tears that she is gone,  
or you can smile because she has lived. 
O 
You can close your eyes and pray that she'll come back,  
or you can open your eyes and see all she's left. 
O 
Your heart can be empty because you can't see her,  
or you can be full of the love you shared. 
O 
You can turn your back on tomorrow and live yesterday,  
or you can be happy for tomorrow because of yesterday. 
O 
You can remember her and only that she's gone,  
or you can cherish her memory and let it live on. 
O 
You can cry and close your mind, be empty and turn your  
back, or you can do what she'd want:  
O 
Smile, open your eyes, love, and go on. 
O 
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ 

Miss Me but Let Me Go
When I come to the end of the road
and the sun has set for me,
I want no rites in a gloom filled room,
why cry for a soul set free?

Miss me a little...but not too long,

and not with your head bowed low.
Remember the love that once was shared,

miss me...but then let me go.

For this is a journey we all must take
and each must go alone.
It's all part of the Master's plan,
a step on the road to home.
When you are lonely and sick of heart
go to the friends we know,
and bury your sorrows in doing good deeds.

Miss me...but let me go.

George R. Monseur 
O 
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ 
O 
Please, I beg you, do not call to offer me your condolences just yet. It will be much to hard for me to hear now! I will need some time to mourn my Mother in my own way, which is in solitude and silent reflection of who my Mom this wonder lady was. I must deal with this loss in my own private way.
Thank all of you for your prayers and concerns. I will try to keep you posted on news as anything develops.
Mom wishes were to cremated like Dad, there will be no services held. Hold them in your own hearts. Lets all do what Mom would want. 
O 
 
You can cry and close your mind, be empty and turn your back,
or you can do what she'd want:
smile, open your eyes, love, and go on.

Love -- Betty Ann Fitzgerald 
O
Don't Grieve  
Don't Grieve For Me, For Now I'm Free. I'm Following The Path God Laid For Me. I Took His Hand When I Heard His Call, I Turned My Back And Left It All. I Could Not Stay Another Day, To Love, To Laugh, To Work Or Play. Tasks Left Undone Must Stay That Way. I've Found That Peace At The Close Of Day. If My Parting Has Left A Void, Then Fill It With Remembered Joy, A Love And Friendship Shared, A Laugh, A Kiss. Ah, Yes, These Things I Too Will Miss. Be Not Burdened With Times Of Sorrow, I Wish You The Sunshine Of Tomorrow. My Life's Been Full, I Savored Much; Good Friends, Good Times, A Loved One's Touch. Perhaps My Time Seemed All Too Brief. Don't Lengthen It With Undue Grief. God Wanted Me Now; He Set Me Free.  
O
Together again! 
O

~~
It has been a privilege, an honor and my sacred duty to care for my Mother.
Love you Mom, thanks for all you gave to me . . . Dave 
O 
 
 
 

Posted at 01:13 AM    

Sat - November 1, 2003

Turning Purple and heavy breathing 


Mom is really a mess again tonight. I was told by Hospice nurse to move Mom onto her side every 2-3 hours, and not her back anymore as the bedsores are terrible there. Mostly due to the dam catheter leaking and Moms thin skin. As I mentioned on the earlier posting, the nurse thinks mom is having spasms that cause the urine to be expelled.

I turned mom back onto her back briefly tonight to give her liquid meds (morphine and anxiety) and waited another 20mins or so then proceeded to move her onto her right side. She started to make throaty noises then threw up very dark brown, feces smelling vomit. Moms feet and knees have purple mottling all over now also. God please take this poor woman and let her suffer no more!

I called Hospice and explained what happened. They said to insert a suppository as she may be nauseous. Did that and will wait now at least another 1/2 hour before I attempt more Morphine and anxiety medicine. Hope that works. She is breathing very heavily as well. Need to go, I am so miserably sorry Mom has to go through all this shit. Time to give Mom her Morphine and anxiety medicine, pray she does not lose it. Dave 

Posted at 07:24 PM    

I feel quilty! 


Mother is completely unresponsive and out of it today. Both eyes are now half closed. It may be her last day on this earth. Although I have been wrong many times before!

I had the Nurse at my request come visit Mother this morning and advise me if anything else can be done for Mom from my end and to fix the dam catheter problem. Last night before I went to bed I check the bag and diaper area and they were drenched. I changed the blotters and diaper, but had no dam badges for Moms bedsore area. It was soaked as well! The nurse say they cannot fix the catheter because Mom is having SPASMS that cause the leakage, a common problem at this stage and with some people.

The nurse checked Mom over very thoroughly, especially the Bag. Adjusting it and so forth. Moms blood pressure was a little up, but not out of range. Her heart was beating a little faster. Normal at this stage the nurse said.

She says I am doing all that can be done for her and a good job. I don't feel like it. We changed the dressing of her bedsores which were stuck, and they left me 4 more bandages with instructions on use to last me awhile. We have Mom on her side now after a good cleaning and she is resting -- "fretfully". Her breathing is becoming heavy and more rapid. She actually had a small BM while the hospice aid was cleaning her. Finally after almost a month a BM. Mom cannot even take in water now, that is how bad she has gotten. She has not even uttered a word today, other than moans of pain while we moved and rolled her to put new bed-sheets and diapers on and new nighty. The aid Darlette will visit more often. She has been coming every other day and does a superb job cleaning Mom up.

They assured me the bedsores are usually a cause of people like Mom with very thin skin. The fact that the cat bag is leaking due to the spasms, does not help either. They also pointed out the purplish discoloration in Mothers feet are signs of her body shutting down. I remember Dr. Orlowski thinking that Mom had a slow growing cancer, unlike dads more aggressive one.
Maybe I did not move her enough at the beginning also was a problem for the sores. Mom always wanted to lay on her back. I told the nurse that perhaps they need to go over these things more frequently with us unprofessional and unaware caregivers. I think I may have read about it a long time ago, but forgot. I feel shitty about it, as if it's all my fault.

I was told my brother Steve was suppose to come up and I pray he does as I really need the help. I will have him go buy some more wash cloths, bleach, tissues and other items Mom needs.

Hospice has been doing fine, I guess I just had to be more demanding of more frequent nurse visits. They told me I would not want Mom to go into a home because Mom would get even less help than she is now receiving.

Need to attend and watch over Mom, She is moaning again... Dave 

Posted at 02:05 PM    

Fri - October 31, 2003

What am I suppose to do? 


Poor Mom, what a mess her catheter bag has become. Even with a diaper on the urine manages to miss the diaper and soak the underneath sheets. I spent an hour again changing her diaper and trying to patch up her bedsores. They are just terrible looking. There are three large red bedsores eating a whole in her delicate underside. The patches they put on hopelessly become saturated with concentrated urine as well. I had no more to apply. I washed her as well I could all the while Mom moaning in pain. Anyone have any suggestions I'd appreciated it. I am at my wits end.
I feel sometimes like I’m not doing all I can for her, and seriously wondering if I am doing the right thing now. Maybe I shouldn’t have gone along with Mom and Hospice so soon. Maybe given Mom more time to see how she would progress without Hospice.

Tomorrow I will call Hospice and demand some alternative treatment for Mom. She may go any day now. Any minute but I cannot stand to see her in such a mess. There must be a better solution for the catheter bag situation.
Anyone have any ideas I would truly appreciate it. What am I suppose to do? Thanks, Dave
 

Posted at 10:53 PM    

Where will we go? 


Mom said to me this morning after her face cleaning, "I want physical therapy." I knew she meant to move her arms and legs! Each arm and leg was moved up and down and sideways, and I rub her legs and feet until she finally says, enough! I tell you, THIS precious little lady will fight this death stuff to the final bitter end. Obviously or unfortunately she will not win, but she's not going to go easily. I am so impressed with her strong, stubborn will. Most people would have given up weeks ago. I am not sure although if someone along the way gave her some thoughts that just maybe there is nothing beyond death. I know we had talked of it on occasion when we were still taking short walks. Thoughts of that nagging, questioning doubt perchance that can't help but cross your mind from time-to-time. Especially when death so near, comes a knocking in your face. Is there an afterlife?

Last night as we were preparing for bed, Mom said again, "I am scared" all I could do was say "I know Mom!"
Kneeling at her bedside I laid my head down next to hers, we stayed head to head for awhile until I could hear her breathing restfully again. Mom is really too sick to say -- but I am sure it would be ... See you on the other side everyone! The Good Side! :)

Last night was pretty easy for both of us. More for me I am sure than her. But our sleep was fairly uneventful. I finally got the trick down to sleeping on the lounge chair -- 2 pillows side by side seemed to help tremendously. I arose about 6:30 and started the morning rituals. Mom wanted coffee she had said late last night. We only had caffeinated so I did not need to give her any that late at night. But as promised, I fixed her some when we awoke. Boy I tell you, unlike when it is med time or for a drink of just plain old H2o, when I came to her and said "here's your coffee Mom," her mouth opened in an instant. She only had a sip or two from a spoon before she quit. Said the coffee tasted burnt. At least that is what I thought she said. It was freshly brewed per her instructions, I promise folks.

Well, I await the Anxiety medication I spilt last night to arrive. It should be coming via FedEX soon. I wrote a large sign attaching to the front door instructing them to knock once softly and leave between the doors. We'll see what happens this time. Mom is asleep and hate to see her awake. I dread tonight's little goblins and hope it is a quite night!

The day waits for news of Mom. Should anything change I will try to write ASAP. Have a good day, Dave 

Posted at 08:47 AM    

Thu - October 30, 2003

Back to diapers today! 


Not to much to report today. Moms condition still worsening minute-by-minute. The silver thread growing thinner by the hour!

After a fretful rest last night, Mom was (after her meds) sleeping peacefully this morning. So I laid down about 9-am and did not awake until the knock on the door. It awoke both of us. It was the hospice people. It was noon already? I had asked the nurse and aid from Hospice to come by today to assist me with changing all of Mothers bed-sheets. After lasts nights problems I needed some professional help.

We changed Moms bed-sheets, put a diaper on her to help absorb the strong ammonia smell of the concentrated urine. Maybe we both will sleep better tonight!
We had discussed the prospect early on of taking the catheter out completely, but the nurse now thinks after seeing all the urine in the bag, that I would be up all night changing diapers if we removed it. We had stopped using the diapers and instead just positioned flat absorbent sheets under Mom.

The catheter is leaking at the entry point, backing up the nurse thinks, but still catching most of the urine. I agreed to leave it in, as after my few diaper changes I learned it is not easy to do with Moms weight and unresponsive condition. Babies are easy, not grown adults. I have a newfound appreciation for the nurses profession. It is not for the weak backed for sure.
I will still have to change diapers, but not as often.

After Hospice left, I cleaned all the soiled laundry and had some food.

I then asked the lady again next door to please watch Mom while I took a nap later today. She has volunteered many a time. I like to use her as Mom liked her, but I worry because she has a hearing problem, she may not hear Mom even sitting 3 feet away.
My TN was beginning to bother me again. Although I am sure the stress doesn't help, sleeping on a lounge chair all night close to mom and this morning on the futon couch just hurts my weak back too much. I usually awake and the back muscles just ache. That is why I needed Rene to watch Mom while I sleep in the other room on the GOOD bed. Speaking of which I need to get to bed (lounge chair) before Mom wakes up!

Oops to late. Mom just woke up, changed her diaper, gave her some water and spilled the dam liquid anxiety medicine all over the floor. I will have to try to give her the anxiety pill at 2 or 3 am now. That will be a trick.

Mom most the day could not speak at all, only nonsense. But just now, after her water sips, in her whispered voice ... she asked me "What's wrong with me" it shocked me sadly for a moment, I told her the truth, "you have cancer Mom" ... "But I am here to be with you!" She just closed her eyes, and continued in her semi-sleep mode.

Well that is where I need to go, into my semi-sleep mode as well.
I can't open the window for the temperatures at night now are around 40 -50 degrees. I checked the temperature before I started this entry and it was about 69 degrees in the house, it is now 66 just opening the window a 1/4". Burrrr it is getting cold fast. Closed the window!

Goodnight to you all, pray that God will take our Mother soon. Mom's awake again, got to go. Dave 

Posted at 10:37 PM    

Wed - October 29, 2003

A very long Silver thread! 


Our dear Mother is still here with us! Still hanging on to whatever little life she has in her. Not much, but she is still here! Can't tell you much today, pretty much the same as yesterday. Her sleep is fretful when she manages some. Each time she awakes she lets out a scared cry and both her arms come up in the air. Both her arms and legs are completely limp otherwise, and with no meat at all on them. I pick them up and slowly rotate a little at her request of about a week ago. She says it feels good to be able to move them.

She is still suffering dementia and hallucinations most of the time. Sometimes she'll come out of it just for a minute, but still has difficulty recognizing who I am.

It is raining most steadily today, and the coolness penetrates everything. The wonderful days of Oregon winter rain I fear are here for the season. I can't think of anything else to say. I will ask the lady next door if she would watch Mom while I shower and take a small nap. Till later, Dave 

Posted at 02:56 PM    

Tue - October 28, 2003

Hanging onto a Silver thread! 


I don't know what to say! Mom has been literally hanging on to a thread all day now. I was so certain she would pass away and so were two Hospice nurses. With her eyes constantly rolled back, and her haggard look and pale waxy complexion she just looks as if she is dead lying in bed! I slept by her bed all night (we only got up 3-4 times) and since 4:30 am sat by her side most the day. She just could not go back to sleep. She will be near sleep, but never really hold on to it. She awakes and wants a few sips of water about every 10 mins, which I still have to put in using the syringe. She is to weak to suck on the straw.
Mom is moaning and groaning much more than usual. So I have not been able to write anything yet. She asks to have her arms rubbed when she could half talk. Then when she was half awake I told her how she was the best Mom and I loved her and so forth and Mom just said "Ok, that's enough" I see she is Very frustrated, she wants to die and can't. At one point I forget her exact words, she speaks in such a dying whisper of a voice -- but it was something to the effect -- "Why can't I go?" I feel so bad for her.

Mike is this how Dad went!?

We had to change her catheter bag because it was leaking. A nurse came by from Hospice to change it Monday late. Her urine is extremely concentrated and comes out very dark reddish brown. The new bag we noticed now today is also leaking!

Today a Hospice aid came by to try to give Mom a bath and Mom just said no. "What's the use" and later, when we were checking her bed sore bandage and trying to reposition her, she said "Why bother" we cleaned her as much as possible, made her comfortable and left her alone.

Chaplain Phil of Hospice came by Monday, earlier in the evening and gave Betty the Eucharist. We prayed over Betty and I swear I thought Mom was going to leave us then.

Well time for more medicine, the liquid Morphine and liquid anxiety med. That's all ... Dave 

Posted at 04:45 PM    

Mon - October 27, 2003

Mom and death are holding hands now! 


Poor Mom is still hanging on, and I just don't know how she does it! She told me this morning, very weakly, as I was trying to get her to drink, and I was talking to her about giving her her pain pills next. She said, "No more drugs" as if she knows they are responsible for her being so out of touch with reality. Even with all the pills required she is now experiencing pain in the area where the cancer is most prevalent. I am going back to adding an ice bag to the inflicted area, as that helped a lot even before all the pills.

Her ankles were swollen yesterday, because I had the bed elevated the wrong direction. Moms feet were one cold and the other warm, so I figured if I kept her legs down the circulation would improved her condition. Wrong, the Nurse last night said, you'd think so but it is just the opposite. They need to be elevated up, and sure enough this morning they looked a lot better.

God please spare her any more agony. As I sit here trying to update you as quickly as I can at 35 wpm, Mom moans a terrible moan so I run to her only to see her eyes rolled back and heavy breathing. I stroke her head and tell her I am here, but I don't know what else I can do. I attempted to rotate her a little this morning, as the nurse instructed, for Mom has also a bed sour on her bottom. Mom screamed if you could call it that and said please not now. I still tried a few more times, but she was in to much pain. They told me to listen to them, so I did and gave up the attempts but I worry about what can happen to her bottom sore if left on it to long. The nurse and I cleaned it last night and covered it good.
Her pulse was 116 this morning and her blood pressure low. I made a nurse come out yesterday to look Mom over, because I was uncertain if I was doing all I could for her.

They think Mom if she hangs on much longer will need to have her catheter bag replaced or flushed regularly as it is being plugged by her concentrated urine. They will teach me how it is done. I have to go Mom is quite now, but I need to check her. Later, Dave 

Posted at 11:36 AM    

Sun - October 26, 2003

Closing slow to the Finish Line! 


Hi everyone, Mom seems to be closing in on the finish line. Last night I asked brother Dick if I could sleep in the folks room as I needed some extra winks. Mom though as usual Dick learns was up and down again most the night, but around 12pm & 4:45am Mom threw up. The first time in a very long time. Could it be having to look at brother Dicks puss?
I only wish it were the case, but fear the cancer is the main cause of her latest problems. Mom's temp is 97.4 degrees this morning and still some blood in her urine.

Dick and I have done what we can to make her comfortable. A Hospice aid will be by today to give Mom a bath. I hope that makes her feel even better. Dick has been a God send, allowing me some down time. I went to do the groceries and took a small nap Saturday. Dick has pretty much caught me up on some of the chores. Dick visited Joe saturday to get beat at Cribbage. Then he got me caught up with Moms bills that needed to be paid, and laundry piles up of course. Thanks Dick - - Now that just leaves my pile of bills I need to go through.

That's all for now, Dick is preparing to return to Medford and work, around 12 or 1pm, so signing off for now. Steve is suppose to come up this Wednesday thru Monday, which would be really great, but I really doubt Mom will ever make it that long. Though I have been wrong before. This precious lady, she just keeps going and going, and going!

This is the slowest dam race I ever have witnessed.

Mom just said, "I have the greatest boys!" and Dick said "That's because we had the greatest Mom!"
Dick and Dave out! 

Posted at 10:06 AM    

Sat - October 25, 2003

I want to Say Every Flower! 


Want does the headline mean, you ask!? I don't know folks. Mom wouldn't say. Hospice never gave me a translation book. I'll have to talk to them about that! I asked Mom this morning, after some OJ, eggs, yes eggs, and even a few sips of Coffee, would she like me to say something to all her friends and family on the Weblog journal. She says "I want to say every Flower" It is pretty I think, maybe some poetry of the dying.

I personally think it means She wants to say hello to everybody! And probably this death stuff sucks. But then it is really hard to understand half of what she says these days. It is my best guess. Oh, except this one message came in loud and clear this morning. I was fixing her scrambled eggs and giving her some OJ, then asked her --"Mom anything else I can do for you" I must really set myself up for these. She says "Yes, sit down, shut up and feed me some more breakfast" -- completely blew me away folks!

After feeding her some more breakfast (in silence) I cleaned her mouth out good, then I got a warm washcloth and bathed her faced good. After I finished, she stopped gazing at the ceiling a moment, reached for my hand -- gentle I held it as she looked right at me and said so sweet and softly -- in almost a whisper, "I love you!" It's so nice to hear that sometimes she emerges from her darkness, awake just long enough to recognize me. Moms are so precious a gift!

Oh good, brother Dick just drove up ... Mom will be happy, as I have been reminding her the past two days your number one born son is coming to visit. After visiting a bit with Dick, I heard Mom ask him, "When it is dark at night and no one is around and I don't have a fly-swatter..." It ends abruptly with Mom wondering what she had just said herself. Dick just looks at me, one eyebrow raised! I am glad I am not the only one having deciphering difficulties. Poor Mom I know it is so hard on her sometimes not knowing even herself what she says and so difficult for her to express her needs, wants or just thoughts. I can see the frustration in Moms wrinkled, frowning face as she struggles, usually in vein, to explain herself. At least with Dick here I know now I am not the only hearing her challenged person in the room.

Addendum: 12:15pm Sorry it takes some time to finish these entries when Mom needs our attention. Up and down!
Mom has started to voice her concerns about BMs. A new worry for the day! First time in a long time. Although I have been giving her nightly Laxative med which is suppose to work, plus remove the impurities in her system, (per Hospice) Mom has still had no BM for at least a month now. Most likely due to lack of food, the body shutting down, and the main cause ... the dam Cancer that is smashing her colon flat. I gave her a small amount of the laxative medicine to calm her down and a little liquid Morphine as Mom was complaining of pain in the area of the cancer. That is all I can do for her now. She has blood in her urine the first sign this morning, a concern I will speak of when calling the Hospice nurse.

I need to sign off, call the nurse and get some more sleep. Last night was better, but I still have some catch-up to do! Dicks turn to care awhile. Poor Mom I can hear her saying to Dick, still talking about flowers and little girls. "Give them to people" she says as "I can't to this day put them in my mouth." "and I need a drink of water!" Just Listen to her Dick and pray for her.
 
Later for now, Dick and Dave!, Flowers from One and Two boys!
And flowers from all the rest!
 
 
 
 

Posted at 10:55 AM    

Fri - October 24, 2003

Mom takes a 180 degree turn! 


Rotated Moms bed 180 degrees just now so she faces the window and can see the sky and some trees and bushes -- well there are some ugly cars to see also, but hey this is Oregon. What's a few old ugly cars amongst friends. Alas, it's not so exciting for her as I thought. She pretty much keeps her eyes closed most the time. We had the bed facing the TVs boring old white wall, but since it was nice outside I thought she'd like. Tried, maybe if she wakens more later.

Gee I take a hour nape and I want to re-arrange the house. No more energy so I sat to jot down a few thoughts. I know you're wondering Wheres the thoughts! Well, It was only an hour nap. Insufficient to re-spark the juices.
Later, Dave 

Posted at 04:18 PM    

To Sleep or not to Sleep! 


Mom had a pretty good night, only awoke 3-4 times thirsty for water.

This morning after the morning pill ritual, OJ and bed position shifting Mom says she is afraid if she closes her eyes she thinks they won't open again. I told her yes they will Mom, I promise. Then later again she reiterates saying "I'm scared they wont open" I say "Yes they will open again Mom, either here with pesky ole me or in heaven with your beloved Donald." She smile her little smile, and closed her eyes!
Gee! ... I don't know ... should I be offended or what? :-)

Well I have some work to do, so signing off, pesky Dave 

Posted at 11:27 AM    

Thu - October 23, 2003

Degeneres and Full Bath Day! 


Mom slept well last night, awoke only once or twice. Have Mom finally awake late about 8:30am. Tried to wake her slowly. Gave her some pain pills removed her diaper gave her some OJ and little Toast she requested, rubbed her legs and arms, took her blood pressure, repositioned her in bed and of course talked to her throughout the whole process. Asked if she wanted any more food now and she said NO. THEN I asked her "MOM anything else I can do for you?" AND she says -- "Yes BE quite." I almost cracked up laughing, but smiled at her and said" yes Momma!"

We even watch Ellen Degeneres on TV this morning. Sometimes when Mom is awake enough I will turn on her favorite news channel with Katy Couric for her to watch. Degeneres came on afterward while I was busy doing other things like dishes and such, not really paying attention to TV and heard Mom say "Do you know who this is?" I went over and said, "Sure of course Mom but didn't know she had a TV show." "Do you want to watch" and Mom enthusiastically says "Yes!" That's when I remembered that Mom likes her. If she comes on every day I will have to try to notice and put her on for Mom from now on.

Mom later looked right at me today and even said thanks Davie and smiled. The best gift I have ever received from her! I love to see her rare smiles now and times when she can talk to me. She seems to have come around this morning a bit. I know they will come less and less so I treasure each moment I can with her.

Hospice aid Darlette is coming by at 2:30 to give Mom a bath. I think I will start to wake her about 2 so she can be awake and enjoy her bath.

Well Mom has gone back to her dreamland, so I have the time to write these thoughts for you and I to read now and whenever we need to remember this beautiful lady.

Thanks all for your prayers. I see they must be working! 

Posted at 11:35 AM    

Wed - October 22, 2003

Another day, another Setback! 


Mom has suffered a setback again today. Earlier in the day she was so-so, (half good, some bad) but now ... I mean she is back to being just gone mentally. Staring at the ceiling, not speaking. Guess this is just the way it will go.

I will need to fight hard for the strength at the end. I have been very close to my Mom over the years, we would go shopping together, talk or take in a movie now and then. Movies like driving miss Daisy. Things like that.

I think as we are growing up we tend to naturally lead our own lives and sometimes we can grow distant from our parents. They are always in our hearts of course, but not always in our minds each minute of the day, so to speak as we go about our daily lives.

Lately this last year though and especially the last 9 months, Mom and I have grown inseparable. With Dads passing, I went to Florida to help out, giving brother Mike a break. He was there when Dad died, so he knows what it's like ... right Mike. I would spend time with Mom cleaning the house and caring for her illness, doctor trips and the like. Mike had almost used up all his vacation time and needed to get back to work full-time. We could joke, when we drove Mom to her appointments and such, that we weren't driving miss daisy ... we were driving miss Betty. That darn movie must have given her some ideas. :)
I feel that is what will make her passing so hard on me now. I tend to grow very attached to those I love and care for. To think of them not being around any more just racks at my heart so. Who am I going to drive around now!? :)

Well, I just spent the last 1/2 hour or so rubbing Moms arms and legs giving her water and trying to talk to her. We use to watch her favorite show, the Bachelor and it was on tonight. I was trying to talk to her and explain what was going on, but she did not appear to care. So I asked her ... "Mom you don't care huh!?" She barely nodded her head yes, and with a slight frown continued to stare at the ceiling. It was cute in a way. It was like she was saying ... "I don't give a @%it son, I'm dying you schmuck!"

She can't talk back very often, (gee no one to argue with anymore) but I think she hears me. I think she is down for the evening, at least until she awakes and forgets she has the catheter and gets nervous because she has to pee! I have to calm her down and remind her, Mom you have a catheter. I usually will give an anxiety pill once early am about 2 ish.

Well I guess all this gut spilling is suppose to be good for me, and since my driving duties are done, I have lots of time to sit and ponder with the pen.

Well pondering all that, I think I am tired and need to get some rest. say, goodnight Dave!
 

Posted at 11:39 PM    

Almost doesn't Count! 


As I requested yesterday, nurse Sonya came by this morning (9am) to check on Moms condition. Mom was WAY better this morning than yesterday. We were actually up most of last night drinking water and taking some meds, and talking somewhat. Where all day yesterday she was just plain GONE. This morning Mom seems fine. I mean as fine as one can be under her condition. Her eyes are not rolled back all the time. She's not Un-responsive etc. She just scared the hell out of me. The aid that gave Mom her bath had told the nurse about Moms cloudy thick urine and overall condition as well. The nurse thought she was very close to death yesterday and thought her kidneys had shut down just from mine and the aids descriptions.

Sonya told me that Mom had asked her if "isn't this the way it's suppose to be", as if Mom thinks this is the way she's suppose to act or be!? Well I can tell you that was no act yesterday. I guess I will just have to try to accept that this will be the way for Mom for some time yet to come. There will be days she's sure to look and act like death warmed over and then days she will snap out of it! I will have to be strong!

I fixed Mom some toast biscuits, which she ate a few bites. She had a sip or two of OJ and then fixed her some Carnation Instant Breakfast and a sip or three of that. That is what I usually feed Mom with she's capable to accept. Yesterday I had to squirt water into her. Not good! The nurse said it is good to get liquids other than water back into her to replenish her electorites (sp). Water alone just doesn't cut it. She had that little breakfast and then grew tired and is sleeping again.

As they say. Almost doesn't Count (except in horseshoes & hand-grenades)
That's it for now. Scared Dave somewhat relieved for the moment! 

Posted at 10:00 AM    

Tue - October 21, 2003

It Feels Very Near! 


I am writing this now to all of you with a very heavy heart, as I don't know if I will be able to later when Mom leaves us. Today I feel Mom is so close to death and I really feel like I'm going to fall apart. I have been watching her all day and she does not respond at all. I can't even get her to drink when she does arose. I squirt a little water in her mouth with a plastic syringe they gave me from one of the medicines. Her eyes just roll back into her sockets and she continues with very shallow breathing. Then she's out again!

I just called the nurse Sonya to ask her what can I do. I feel so dam helpless. I want Moms suffering to stop and yet I don't want to just pump her full of morphine.

I feel so sad and helpless and lost, and weak. She has not even spoken much at all today. We had a hospice aid Darlette come and give Mom a bath and Mom was almost totally out of it even then.

Thanks! love, Dave

Addendum 5:45pm: While I was writing this, the lady next door Rene came by to ask if I wanted to go for a walk. I almost refused, because I am so worried something will happen when I go somewhere, but I decided to go. You know Murphy's law ... well it did happen. I went for a ten minute walk, and when I came back, Rene said she had just woke up and more or less talking. All day asleep, and then she awakes when I take a walk. Anyway I was able to give her a little water AND even talk to her a little bit, although one-sided. I then gave her some liquid pain medication.

I asked her then, Mother do you know who this is, referring to myself, and Mom said in the weakest voice "Yes, you are my beloved David" I was so happy she still has something left in there. She then went back into sleep mode.
Lord, be gentle with her and let her go peacefully without pain. Amen, Dave 

Posted at 04:54 PM    

Mon - October 20, 2003

And the beat goes on, on, on! 


Well the good folks from Hospice have come and gone today. Nurse Sonya, April and Marie the massage person. So Mom has been checked over, talked to and massaged. Almost ... repeat almost makes dying a lot less painful. Well actually it does. Mom is much more relaxed afterward, than before sometimes. Hey it's not like I'm not doing a good job, but I think Mom gets tired of looking at the same ole puss everyday :)

I need to stop and relax a bit myself. Just finished a project this morning on the computer and my eyes are starting to bother me. Seeing double! You know how as a kid when you crossed your eyes to make a funny face and you kind of seen double for a minute? Come on, how many of you were really kids if you didn't do that at least once a week? Let see a raise of hands, oh wow look at all those hands. Except gee ... I forgot, I have to count only half of those. Well anyway, it's really not all that Bad, Bad. Sometimes it comes, comes and goes, goes, you know what, what I mean, mean?? I think it's the meds for the TN pain.

Well, a cold cloth on the eyes (all four of them) and some rest, rest and I, I will be as good, good as new, new. Later, later you all, all. Dave. Dave. Bye, Bye! 

Posted at 01:46 PM    

Sun - October 19, 2003

Mom Soon will be Safe! 


Well I have been trying to see if I could get through to Mom to converse with me and she is still there folks. We talked about where she was, and what she was dreaming about. She's ready to go she insists and doesn't want me to feel sad but good for her. I assured her that I will miss her so terribly much but also I did not want to see her suffer so. If she was ready I told her God would take her gently in his arms and lead her down her final path. I said that Dad had surely got his shoes polished by now and his tie on straight and is ready as well to accept her in his open arms.

I could not get her to eat anything now, but earlier she did have some of her favorite blueberry yogurt.

Brother Richard left today around 1am I think, thanks for the help Bro! Didn't get all I need to do done, but oh well. I just received an email last night for 3 more business cards so I should start on those soon.

Many of you I am certain have heard of Josh Groban. He sings a song ...The Prayer (With Charlotte Church) first done by Andrea Bocelli. It is a beautiful song. I was playing some pretty soft music for Mother and typing this when this song and these words echoed to me. I want to pass on to you.

"Lead us to a place, guide us with your grace ... To a place where we'll be safe."
"Lead us to a place, guide us with your grace ... Give us faith so we'll be safe."



Moms final Path!


Thanks, Dave

I hope God through his grace, will lead you all to a place where you will be safe.
________________________________________________________________

Addendum: 5:15pm
Mom stirred so I went to her and tried to give her water, but she refused. Mom just asked where was Dad, I told her he was getting ready to see her. She says I'm so tired, to tired to go to him ... he will have to come to me. I told her just close your eyes Mother and He will come to you. Just rest Mom. God I pray to you ... please, if you must take her soul now, be so gentle with her.

I have to go now ... Dave 

Posted at 04:19 PM    






















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