Donations (Updated June 9, 2005)
Although the severe financial burden has been lifted
with the awarding of insurance coverage by Blue Cross Blue Shield
for Michael's transplant, we are still accepting donations to help
with medical expenses not covered by insurance. These expenses include
transportation, housing in New York, post transplant medications,
home nursing care and occupational and physical therapy.
In addition, donations will help with the loss of income due to
a sabbatical leave (at half pay) allowing Michael's dad the ability
to stay home and care for Michael after the transplant during the
upcoming 2005 – 2006 academic year.
It is hard to know what the future holds. We can only
hope that it will bring good news for Michael.
Our warmest regards,
The Interdonato Family
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* * *
Updated: May 25, 2005
It's late, but I need to let you all know that a miracle (one
of many we are going to need) happened this afternoon. We got the
word, that even with the announced intention of Blue Cross Blue
Shield to deny a second request for insurance just last Friday under
Dr. Garvin's metabolic protocol, that the external reviewer would
overturn that decision with very strong support for Michael's transplant.
We got the word by phone from the Empire BC/BS case manager late
this afternoon, that the decision was made to grant insurance coverage
for Michael's transplant and that we would be receiving a confirmation
in the mail in the very near future.
We can hardly believe it ... hopefully we won't wake up in the morning
and find it was just a dream.
Michael has just passed the first of many hurdles. He will continue
to need your support and prayers. I can't begin to tell you how
relieved we are, yet how sobering it is to know that Michael is
only just beginning his journey on the medical front. We can only
hope that he will continue to have success as we move forward.
I will tell you that Michael cried when he heard the news. Thank
you all so much. You are all very special people!
The Interdonato Famiy
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* * *
May 2005
Michael has regrettably lost his battle with the Blue
Cross/Blue Shield FEP insurance company to cover the costs of
his cord blood stem cell transplant (BMT). In spite of this fact,
and with the knowledge that bone marrow transplants can be very
expensive costing in the vicinity of 350,000 to 400,000 dollars
(and potentially a lot more with severe complications), we are determined
to raise the money needed to give Michael an opportunity to beat
this disease. Nothing is guaranteed, even with a successful transplant,
but doing nothing is not something we who know and love Michael
can even begin to consider.
One would be hard pressed to begin to dream of a disease as malicious as MNGIE. Living with this disease as it continues to attack someone you love is very difficult to do. It is extremely hard to watch as Michael's nervous system slowly deteriorates to the point were, eating, walking, feeling a keyboard, or touching someone you love with your fingers is slowly being taken away. Time is critical to Michael's survival and hoped for recovery. Even under the best of circumstances, Michael has a long road ahead, to first stop and then hopefully recover from the ravages this disease has already inflicted upon his body.
We are asking visitors to this site, to consider helping with a
donation to Michael's Hospital Transplant Fund. Every little bit
helps. 40,000 visitors donating 10 dollars each would cover the
escrow necessary to schedule an admission to the Children's Hospital
of New York Presbyterian. (We are still in the process of negotiating
the exact amount.) Assuredly, the larger the donation one might
be so inclined to give, the fewer people who will be needed to reach
our goal of 400,000 dollars.
Currently the links for donations will take you to the Paypal
web site. Please, even if you "do not" have a paypal account,
the option for making a donation with a credit card at the paypal
location is available. Electronic donations are securely handled
at the Paypal site with the latest encryption available. Please
follow the Paypal instructions to make your donation. Simply sending
a check or cash in the mail is also a possibility.
I can't begin to tell you how Michael needs "A Second Chance" at life. His family, as do many of his doctors, know he has a real opportunity to beat this disease, God willing, but, it's going to depend on those of you around the world who don't know him personally to give Michael the opportunity to emerge from the shadows of this disease and see and experience all the wonderful things this world has to offer.
We thank all of you so much for your kindness.
Sincerely,
The Interdonato Family
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